GBS Victims

Hello again,

I can't believe it's been almost a month since I last posted here. Time flies!

As I intended, my activity with my website (www.gbsnightmare.com) has brought me into contact with families of new GBS victims. Without violating anyone's privacy, I was contacted about three weeks ago by a family from the midwest whose mom was diagnosed with GBS the middle of June. She's been on life support since that time and in their last email to me they indicated that she's being weaned from the ventilator, about twelve hours at a time.

Many of the questions they've asked about reactions their mom is having are Oh, So Normal! I wish that weren't the case, but it is. Victims of this illness feel so helpless and so hopeless. The mind is still active, but the body just will not respond; and so someone else has to do everything for you. I was going to say, "What a drag!", but it's so much more serious than that!

If you've been there, or have gone through it with someone you love, please let me know so we can help other victims who are still in the middle of it.

Thanks for your time.
gbsbyron

GBS Today Welcomes You!

Hello,

My name is Byron Comp and that's a picture of me almost eight years ago when I was beginning my recovery from Guillian-Barre' Syndrome. That illness literally became "My Worst Nightmare," and as my recovery allowed, I wrote a book about the experience. The book is dedicated to all the other victims and their families and friends who have been struck down by this horrible illness.

You can find copies of my book on Amazon.com or through my own website, http://www.gbsnightmare.com/. But the reason why I created this blog is to communicate with other survivors and their families and to offer support and encouragement to any victims who are going through their own nightmare right now!

Please contact me so we can share experiences and can thus encourage each other. I look forward to hearing from you.

Thank you for taking time from your busy day to read and respond to my blog. Byron